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Back from the Abyss for Headache on the Hill

April 7, 2015

Let’s go back to the beginning. Shortly after college when I was 22 and working at a bank, I had my first migraine. They say that everyone remembers their first migraine, and hell, they are right. I had to leave work, lie down in a dark room and be sick. My mother was there with me, and the only thing she could do to help me was to stroke my back very, very lightly and tell me I wasn’t going to die.  I could barely stand to have her touch me. I had never felt anything like that pain in my entire life.  To this day, my mom can tell when my pain is bad, just by looking at my face.

Now that I am 45, my migraine disease has progressed to the point where the pain and other symptoms are daily.  My entire life has been affected, and things keep progressing in a bad direction.  My doctors are becoming increasingly more difficult, because we have tried almost everything, and I don’t think doctors like to “fail”.  BUT I really wanted to start blogging about the daily struggle I have staying positive while in pain.

Here are a few things that help keep me positive:

  • My Dogs –
  • Friends and Family
  • Gardening
  • American Headache and Migraine Association (AHMA) –
  • My Online Migraine Buddies
  • Outlander
  • Science Fiction

In two weeks I am attending Headache on the Hill for the first time, an event where patients meet with congressional leaders to advocate for increased funding for headache research.  I am SO excited to attend, and DC is one of my favorite places to visit.  The traveling will be difficult, but worth the risk. I get a lot of satisfaction from advocating for myself and other migraineurs.  So hear’s nothing!

Talk at ya again soon, and as always, stay positive!     Sara

Sara cropped

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